Hi Everyone!
Wow. Today was a completely different day than yesterday! Thank goodness, I don't know how much more baby girl could have tolerated.
Here's what we've accomplished today:
-She is breathing pretty well on her own (with the ventilator in still)
-She had her dressing removed from the chest closure. We are now looking at stitches instead of a bandage. Funny story: We saw there was a little bit of tissue coming out between one of the stitches and we were told it was a little bit of the fatty tissue. Matt started saying to Dr. Watanabe and Ashley that it looked like meat coming out, like something he'd see in The Walking Dead. HA!
-Ella has had a lot of changes done today (ultrasounds, IV pokes, blood draws, facial cleanings, moving her to her side, medicine changes, etc.) and has tolerated them all beautifully! She is usually a very sensitive little one, but today she has been a total CHAMP!
-SAT oxygen numbers are looking good!
-She'd get aggitated getting a few things done, but calmed down really well without needing more pain medication.
Here's what we've overheard from the nurses/doctors today:
"Numbers look ideal!"
"These are spectacular numbers!"
Our nurse thinks that Ella really likes her because of how well she's done today "Maybe she just likes me. Ha!"
"She's a strong girl! No boy would've responded that well!" HAHAHAHA! Preach it doctor!
As you can tell, MUCH better day today... so far. We've really learned to live in the moment here. We are thankful for such a good day and pray for a good night as well. They are hoping to take out the ventilator soon (maybe tomorrow! If things keep going the way they were today it's a definite possibility!) and I cannot wait for that day!!! Who would've thought that I would be looking forward to the day that she can cry? I am sure I will be eating my words soon. 😀
We were also called into a meeting today to talk about what happened with the ventilator on Wednesday morning. There wasn't a ton of information that was given to us yet, but I'm glad to hear that they pulled both of the ventilators that are that model off the floors. I just don't want anyone else to have to experience that...
Lastly, thank you for all of your prayers. I cannot say that enough. We are truly blessed by our community around us. I know that the Lord has big plans for our baby girl and I am already seeing so many blessings coming from this painful experience. Please pray for her respiratory rate to even out and to continue to be stable so that we can get that ventilator out!
Love to you all!!!
Jillian
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
Tuesday, April 17, 2018
Subscribe to:
Post Comments (Atom)
Wednesday... Thursday...Friday-We Are Home!
Wow. Talk about a whirlwind. Sorry I wasn't able to update everyone on Thursday. Things just got so busy!!! It was so different than wh...
-
It's with a heavy heart that I write to you... Our sweet Ella girl went to Heaven on Saturday morning. Her passing was really sudden...
-
This morning Matt and I took it easy and arrived at the hospital around 11. We got an update from the nurses saying that things went well la...
SO HAPPY to hear Jillian. That girl is strong just like you!! Continued prayers that things improve with sweet baby Ella.. She sure is in Gods hands.
ReplyDeletethanks for keeping us up to date. it's good to be able to know how to pray best for you guys.
ReplyDeleteFight! Fight! Fight! Little Ella! Let that red hair that's in you somewhere show through! ;)
ReplyDeleteGlad they aren't just trying to "forget" the issue that happened a few nights ago. I'm sure a lot of it is hospital CYA, but at least they're trying to be as upfront as possible. Hopefully it was just a wonky machine and it will be smooth sailing from here on out (tech wise anyway).