Hopefully this will be the last post of the day because that'll mean that everything is going well! 🙏
So not much has changed since the last one, but we are feeling optimistic.
*Her blood pressure/heart rate are stable and are in the high 60s and 60 and above is the goal. This is really good because yesterday her numbers were averaging 53-55. This is proving that the procedure they did this morning has been really beneficial. She hasn't had to be given a ton of the medication that helped stabilize this, it's stabilizing it on it's own!
*Dr. Nasirof said that we are probably going to close the chest on Saturday.
*The nurse that was on today said that she will be handing Ella over as a totally different kid to the night shift tonight because she's doing so much better.
*The doctors put her on a diuretic, which is a good sign. They were nervous to do so earlier because it would remove liquid volume which she needed to help keep her blood pressure/heart rate up.
We need to pray for a calm night (I guess last night was a bit rough). We also need to pray for her to pee more so that they can see that the kidneys are working correctly and so it would remove excess fluids.
I am adding a photo that I took a couple days ago of Ella. If you don't want to see her hooked up to a bunch of stuff, don't scroll down too much. You can barely see her but I wanted to give you an idea of what we see when we look at her now-a-days...
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
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Wednesday... Thursday...Friday-We Are Home!
Wow. Talk about a whirlwind. Sorry I wasn't able to update everyone on Thursday. Things just got so busy!!! It was so different than wh...
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It's with a heavy heart that I write to you... Our sweet Ella girl went to Heaven on Saturday morning. Her passing was really sudden...
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This morning Matt and I took it easy and arrived at the hospital around 11. We got an update from the nurses saying that things went well la...
I know with Daniel we were so thankful to live in the time we do...just look at all the technology man has invented to help sustain life! It is amazing... God has your little one!! Much love from the Myers
ReplyDeletePraying that Ella continues to heal and that God continues to give you all strength during this time. If you have other family or friends visiting that need a place to shower or get a good nights rest, please know that my door is always open and I'm near Watt Ave. and Hwy 50. Linda has my #. All the prayer warriors in the family are on this and God had you all in his hands. Sending love and hugs. KT
ReplyDeleteHAS you all in his hands. :)
DeletePraying for Ella, her wonderful parents, grandparents, Eli and the medical staff. Praising the Lord that He has allowed man to advance in the caring of your precious daughter. Viewing all that "spaghetti" attached to your baby is scary. Praying that you can trust and rest in the hands of the Lord as He is our sustainer and healer. Please let me know how to be of help. Love and prayers, Rick and Barb
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