This morning Matt and I took it easy and arrived at the hospital around 11. We got an update from the nurses saying that things went well last night. They are still trying to lower the percent of oxygen that she is needing from the machine, but it is down to 40% from the scary 80% yesterday, so that's progress! They are looking for her blood pressure to get better because right now it is low. I was told this is relatively normal because her circulatory system is still trying to adjust to being a single ventricle heart, not a double one like we all have. This isn't ideal, but I guess it's pretty common. We are also looking for her chest to produce less excess fluids. They said that this is due to the bypass machine and the reaction the body has to it. So it's pretty normal, but that's something that they are closely monitoring. So if you could pray for all of those things to get better, that would be amazing!
If things continue to go well and progress, her chest will remain open until tomorrow morning at 7:30am. They will turn her PICU room into an operating room and the surgeon will be sewing her up! I am not going to lie, that will be a huge relief. It's a little unnerving seeing the movement of her heart beating in her chest. I am glad I am short because I can't see into it very well! 😊 They have a kind of sticker that covers her heart that is a semi-transparent yellow-brownish color, so you can't really see too much of what's inside.
I have gotten a lot more brave to be around her today. I was able to hold her hand for a while until she got the hiccups and totally freaked me out haha! 😊 The nurses were making sure it wasn't a seizure but the surgeon's assistant told us that they were the hiccups.
I will update more later if something comes up, but right now we are just waiting around. We will get to see Eli tonight which we are VERY excited about! He will be staying with us at the Ronald McDonald House along with my mom. We would love for him to stay with us all of the time, but if we were to get a call in the middle of the night where we'd need to leave to get to the hospital quickly, we want to make sure we are able to do so. Hopefully he wakes up from his nap soon so we can see him! 😃
Once again, thank you for your prayers. We are so blessed by each of you!
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
Tuesday, April 10, 2018
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Wednesday... Thursday...Friday-We Are Home!
Wow. Talk about a whirlwind. Sorry I wasn't able to update everyone on Thursday. Things just got so busy!!! It was so different than wh...
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It's with a heavy heart that I write to you... Our sweet Ella girl went to Heaven on Saturday morning. Her passing was really sudden...
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This morning Matt and I took it easy and arrived at the hospital around 11. We got an update from the nurses saying that things went well la...
She has so many people world wide praying for her, she's our little warrior!
ReplyDeleteAnd yay, finally found a great advantage for being short. ;) Love you all!
Thank you for keeping us updated with the blog...I have been refreshing the site all day to see how little Ella is doing. We are all cheering for her so hard! You guys are amazing
ReplyDeleteThank you for the upset of Sweet Strong baby Ella!! Continued prayers!!
ReplyDeleteThoughts and prayers are with you all. Thank you for your sweet update. I know God has you all in his loving care and It's an honor to come alongside you in prayer. God is good ��Love to you all
ReplyDeleteSo happy to hear the update. Been worried about you. YOu andMatt are so very strong. Thanks for all of the updates!! Still praying hourly
ReplyDeleteThat was mine above....Stephanie
ReplyDelete