Please pray that Ella's numbers on everything will continue to be normal overnight. Everything has pretty much stayed the same as earlier. The doctors and nurses have been great. I just wish we could hear some good news instead of "this is normal".
We went to say goodnight to her and it was a little unsettling... Just seeing her laying there is so hard. I wish I could switch places with her so she wouldn't have to go through all of this.
Not sure if the closing of her chest will be tomorrow morning. Things need to stay normal and/or improve.
Matt and I are hanging in there. We are happy to have Eli with us. He's such a joy to have around and a good distraction, especially for Matt. I am feeling a little down tonight after our visit, but I just need to pray and give it to the Lord and I'll feel better. 😊
Prayer Request: Pray that God would help her blood pressure go up without the aid of medication. Pray for her excess chest liquids to lower. Pray that there will be some good news.
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
Tuesday, April 10, 2018
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Wednesday... Thursday...Friday-We Are Home!
Wow. Talk about a whirlwind. Sorry I wasn't able to update everyone on Thursday. Things just got so busy!!! It was so different than wh...
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It's with a heavy heart that I write to you... Our sweet Ella girl went to Heaven on Saturday morning. Her passing was really sudden...
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This morning Matt and I took it easy and arrived at the hospital around 11. We got an update from the nurses saying that things went well la...
Oh sweet Jillian. I am praying and praying for you and your sweet Ella. Dear God please stabilize the fluid load in sweet Ella and keep her blood pressure at an appropriate level so that her chest can heal and her parents can put their arms around her like you are. Please keep your arms around Jillian and Matt and family for continued strength and love.
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ReplyDeleteJillian, I have been following your path daily. Thank you for a direction. We all want to help. We are praying constantly for your little Ella and your family. We love you and you are in our thoughts constantly as you move through this difficult time. Prayers continue.
ReplyDeleteHi Jillian, just letting you know, I deleted my first comment because my name didn't show up. I figured it out, and now you can read my name.
ReplyDeleteCindy
Jillian - you and your family are in my prayers. Seeing you all enveloped in God's love and peace
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