Just a quick update again, the oxygen levels that she is relying on by the machines is down to 55% from 75-80%. We want this to keep going down so that she won't be relying on that as much and will be breathing more on her own. If this is kept up, things will be better and she won't need the ECMO machine.
We still have not been able to see her yet and don't anticipate to any time soon. The surgeon's assistant came and told us the news. I am so thankful. It gave me a glimmer of hope. That's what we are praying for right now. To not lose hope.
Lastly, thank you for praying. It has been hard for me to continue to pray in these tough moments but I know that the Holy Spirit intercedes for us in these times and I have found such a peace in that. We feel your prayers. Keep 'em coming!
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
Monday, April 9, 2018
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Our prayers have been non stop. Thank you for keeping us all updated. Your dad has also been great when I ask for news and I relay to Toni. Everyone in my office thinks she is beautiful and so is her family. They are all praying that things continue to go well. I think they've adopted her. Know that our thoughts are continuously with you and we send you all tons of love. Aunt Judy & Uncle Gaylord
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