Hi all!
This post will be short and sweet. Ella has been a total ROCK STAR with the new g-tube. It looks like it is pretty painful, especially when she is coughing, but she didn't mind it when I held her. She has been taking her food well and it doesn't seem to bug her at all. I was not expecting them to be able to go back to full volume so quickly, but because she is responding so well, we are there! I just assumed it would take Ella a little longer to adjust since everything has taken a little longer for her haha!
Ella has been chunking up quite a bit! Her legs look like "normal" baby legs! No more little chicken legs. We may even have a baby that will get rolls! Eli never did 😊. So the fortified breast milk and HCT oil has been really helping!
So the main reason I wanted to write a post tonight is because Ella is still needing oxygen support (25%) and they're thinking that she may need it when she goes home. I REALLY hope she doesn't because she will have to be hooked up to an oxygen tank all of the time and I feel like it will really hinder her physical development because she won't be so mobile. The thought of trucking around an oxygen tank any time that I take her anywhere sounds pretty daunting. Please, please, please pray that Ella won't need any O2 support ASAP. They are talking about sending us home on SUNDAY, but I would like to stay if she's still in need of oxygen to wean her off while we are in the safety of the hospital. Who would've thought I would be the one requesting to possibly stay longer??? HA! So I am praying she will be able to be weaned off through the day tomorrow.
Thank you prayer warriors!!! Love to you all!
Love,
Jillian
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
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