Hi everyone!
Ella has been doing really well with her sprints off the ventilator and the PICU doctor that is now on shift would like to switch things up again. She would like to get Ella's lungs strong enough to go most of the day without the ventilator and then allow her to rest on the ventilator at night while we sleep. It will be more like how we will be when we go home. And speaking of which... We have been told that we should be able to get discharged and go home within 2-3 weeks! Hallelujah!!!! We are trying not to get our hopes up but are so excited to see the light at the end of what's become this very long tunnel.
Ella is still receiving shots twice a day for her blood thinner. Matt administered one yesterday for the first time! Aaahhh! I am still too chicken to give her the shots, but I know I will have to soon. I laugh because a lot of my life I wanted to be a dentist, but once I found out I'd have to give shots, I decided that wasn't the career for me. And now look! I am going to be giving shots anyway. Haha! Funny how things like that happen.
Matt starts up work tomorrow for the first time since the day I got induced. It has been such a blessing that his work has allowed him so much time off. He is only going back two days a week until we get Ella home. He will have Eli with him and Eli will go with his grandparents while he's at work. Before driving the boys home today, I told Ella we'd have a couple of "girls' days", just her and I (and the nurses doctors, etc...). But I am excited and nervous to be alone with her. I feel like it'll be good bonding time for us. Just a mama and her girl 💜.
Recently we've had to figure out a lot of the insurance and state assistance stuff. It's pretty annoying and tedious but hopefully all the effort we've been putting in will enable us to get an at home nurse for the nights. Please pray that God prepares someone for us and that it won't feel weird to have someone in our home.
We can't wait to get our little one home and be together at last! Praising God for His provision over all of us over the last 2 months.
Love,
Jillian
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