Wednesday, May 16, 2018

"We Have A Surprise For You!"

This post will be short and sweet, but we have had some awesome things happening so I wanted to share!

We walked down the hall in the PICU and were greeted by the respiratory therapist saying, "We have a surprise for you!" We walked into Ella's room and she was OFF THE VENTILATOR! They are doing sprints again, similar to when she was extubated, but she has been doing so well that today they wanted to do a 6 hour sprint! This time was different than other times because they had her completely disconnected from the ventilator. She was hooked up to a tube that just keeps her airway humid. They are hoping to be able to do a 12 or so hour one next then see how she does then 24 hour sprint and then she may not have to go back on the ventilator! How awesome is that?! We were so excited. God just keeps showing us that His plan with the trach was (of course!) right way to go.

The other good news we got was that she would get her chest tube out today. While we held her, it was so much easier to move a little because we weren't so worried about that tube. We were also told that they were upping her feeds (1 ml an hour 😆, but hey! it's something!). With more nutrition she'll be able to heal quicker and better.

The clots are still a concern and we continue to pray God takes them away miraculously.

We have been encouraged to hold her more and more so the wound on the back of her head heals quicker. I definitely won't argue with that! 😁

Please continue to pray for those clots to go away and for her to grow more and more healthy. We would also love prayer for Eli during this time. He has been such a trooper. We are so thankful for the family that has been taking care of him. But we miss him a ton!

Love,
Jillian

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