Hi everyone!
We are just starting our blog and hope to post when information is given to us. Our goal is to inform people as we start our lives with a new baby with HLHS.
So far, we have had two non-stress tests a week down in Sacramento and our baby girl has been showing great numbers in her heart rates each time. We meet with our specialized OBGYN doctor, Dr. Gilbert, every other week and really like him. He has made me feel at ease every time that I've seen him, which is important in a high-stress situation like ours! The next time we see him will be Monday, March 26th. He said he would explain how the inducement will be on the 4th of April. I will keep you posted on that once we find out.
We have met with our surgeon, Dr. Nasirof, and really like him. He is really skilled and honest. When we met with him, he kept calling Baby Girl "our baby". Isn't that so amazing?!
We also have a wonderful social worker named Jacqueline. She has helped bridge the communication between our doctors and has given us information about the hospital and all they offer. One of the coolest things she's done for us was when she hooked me up with another mom who had her twin girls, one with HLHS. The Lord was totally involved in our meeting. It's an incredible story.
Anyway, I have been off work since February 28th and have really enjoyed the time off to do things before the baby comes. I have especially loved getting to see and be with Eli every day. He has been such a joy during this season of life.
We can't believe we get to meet our baby girl in 2 WEEKS!!! YAY!!! Although we are a little nervous about what is to come when she joins us, I think our excitement outweighs it all.
Lastly, thank you to everyone who has prayed for us and/or supported us financially in the last couple of months. You have no idea how much it means to us!!! God has been so good to us during this whole process and we know that He has a special purpose for our baby.
Love,
Jillian
The story of our journey with a daughter diagnosed with Hypoplastic Left Heart Syndrome (HLHS)... And as it continues with our son with a VSD.
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Welcome to the blogging world. Continuing to pray for you all, she'll be here before you know it, and will be the most super cutest babe in all the world! I know God's got this and you in His hands!
ReplyDeleteThanks for sharing your story with us, we are praying for your family, doctors and of course your baby girl...Love and hugs Ted and Annette McTighe
ReplyDeleteThanks for doing this, Jillian! I'll be reading along and holding you all up in prayer as you welcome your new little girl and learn to live with her condition.
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