Ella Speed

It's been a while since I've last posted and lots has gone on since!

Ella has been defying the odds! Her heart function is still good but is needing the pacemaker. We are praying that her heart will soon kick it into gear and get it's own pacing down. She's been back and forth... complete heart block, down to 2nd degree, down to 1st degree, and today is unfortunately back up to complete...

Her IV trees are starting to dwindle a bit and she's been getting a little more nutrition through the IV and started breast milk again yesterday. We are praying for no chylo! She has not eaten since last Monday at 2am so the mama bear in me wants to pump that girl back up.

Because of the ECMO, not being able to move very much, and lack of nutrition, Ella has some big wounds and the old one reopened...

This morning the xray showed that Ella's left lung has partially collapsed. They are getting another xray done in a few minutes to double check it, then will need to bronch her, which is essentially putting a scope down her throat checking out the lung then sucking out gunk if needed. I hope that the xray is just wrong, but I have a feeling it's not.

Ella's fluid output was minimal early on so she was pretty puffy, but now they seem to have it under control and she looks a little more like her cute little self!

So once again, we are going at Ella speed, slow and steady...

I will update more when I know more!

Love,
Jillian